But, I think Katie could have found a better way to meet her needs. Sometimes I also feel like I’m stuck to my disability. I wonder if sometimes I did something to deserve XP, something terrible that requires me to do penance in my house and my room all day, every day, until the sun sets.” I can understand how Katie feels that way sometimes. In her mind, Katie finds herself relating to the Greek goddess Cassiopeia: “According to Greek mythology, she’s chained to her throne, forever stuck there as punishment for her boastfulness and vanity.Other people have neurological issues, but it’s not related to sunlight. Some people do get skin cancer, but it doesn’t happen that quickly. Describing XP, Katie says, “If sunlight so much as glances off my skin, I’ll get skin cancer, and my body can’t repair the damage so my brain starts to fail.” That’s not how XP works.Here are some parts of the book that I, as person who has XP, found amusing and disturbing. So she stays locked inside, only going out at night. Katie says that even if the sun touches her skin, she will die. The book Midnight Sun is told from the perspective of a girl named Katie who has Xeroderma Pigmentosum (XP). Book Review: Midnight Sun by Trish Cook (soon to be a major motion picture)
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